It all started on Monday — yes, I know that the week starts on Sunday, but my story begins on Monday. I went to work as usual, although I had a strange feeling that I shouldn’t. I got a call from my husband around 10:30 am. I love when he calls, because no matter what the situation, he always starts the call with “Hi baby, whatcha doin?” or “Hi gorgeous.” I asked him what he was doing and he said he was at the Pikes Peak Regional Hospital (in Teller County about an hour from where I work). My heart stopped. This could mean one of two things: 1) He had to take a “client” to the hospital, or 2) He is in the hospital because he is sick. For those of you who are new to my blog, my husband had a liver transplant about 4 years ago due to PCS. He said he had a fever, the chills, his head was pounding and he was nauseated. Once in a while he will reject his new liver, and this sounded like one of those times. When I arrived at the Hospital, he was YELLOW. Not a pretty sunshine shade of yellow, but a jaundice shade. Was I worried? Yes! See, normally if he is rejecting, we go to Memorial Hospital in Colorado Springs and he gets a steroid blast, and within the week he is doing great. Not this time though. This time, his doctor wanted him taken to Denver. That made me very nervous.
We decided I would drive him to Denver. He could have taken the ambulance but Rick, being “the job” didn’t want it leaving the county. He was worried that with road conditions, they would need it for something more important (One of the many reasons he is my hero).
The road conditions were getting pretty bad. Sleet turning the road into ice made for a very scary trip into Denver. It took me a little over 3 hours to get there with my hands locked on the steering wheel. I was turning onto Colorado Avenue when he asked me if I knew where I was going. Sheesh. He was really out of it. Earlier, he kept asking me if I knew where it was, and I kept telling him yes. After all, we spent many a vacation in that hospital doing fun-filled testing. Then he tells me “They moved it.” I was trying to be very patient. I knew they had given him pain medication for his throbbing headache. “Where did they move it?” I asked. “It’s on 16th.” He said. I don’t know Denver that well so it was really fotunate that he asked me to grab his GPS from his police car before we left. I normally am not a big enthusiast when it comes to technology (I know, I am in the tech biz so you think I would embrace it) but I was seriously loving this little gadget. It got us to the hospital in no time at all.
We arrived safely and he was placed in a room on the Transplant floor. I was still completely in the dark. I didn’t know what was wrong with him, what needed to be done, and when it would be done. The nurses came in and made him as comfortable as possible. I told them that I would be staying with him, and they didn’t object. They gave me a comfy chair and the waiting began. Around midnight the nurse brought in some contrast for him to drink. They would be doing a CAT Scan of his guts. He seriously hates contrast. I don’t think anyone likes it. He had to drink a cupful every 20 minutes. He kept falling asleep and I hated waking him, but it was necessary. I was worried that he would not be able to keep it down and he would have to start over, but going slowly, he had no problems. They came and got him around 2 am. I finally fell asleep and didn’t even hear them return him.
Tuesday:
When morning arrived, the doctors came in to let us know the scoop. He would be getting a procedure that drained the bile from his liver. They would be cleaning out the bile ducts, and installing a tube in his side to be worn for about a week. People with PCS also have Ulcerative Colitis, and in this situation it was the Ulcerative Colitis that caused the problems. His bile ducts were inflamed and clogged and needed to be cleared. Yuck.
After a very, very long day of waiting, they took him into surgery at around 3:30 pm. While we were having fun in Denver, my son Kegan was supposed to be taking care of things at home. I tried calling him and calling him and calling him. No answer. He should have been home from school by 3:45. What the hell. I was praying he didn’t miss the bus. On top of worrying about Rick in surgery and Kegan getting home, my phone was almost dead. It hasn’t been taking a charge well, and unfortunately would not charge on my car charger at all, AND…I could not call long distance on the phone in the hospital. AAHHHHH. Yeah, I was freaking out just a little. While Rick was in surgery they moved us to the other side of the Transplant floor where he should have been in the first place. The desk couldn’t get our bed number right, so all our calls were going to the wrong bed. One of the guys Rick works with called (the wrong bed) to check on us and I told him my phone situation and that I couldn’t get a hold of Kegan and I was really worried. He said he would send an officer to the house to check on him. That made me feel better, but the waiting was horrible. I bit off every nail and ripped apart my cuticles until they hurt. I didn’t even know I was doing it. I knew I would have to go back home that night because Kegan would be flying out in the morning to visit his Dad in Nebraska. I was not happy that I would be leaving Rick for the night, but it couldn’t be helped. I got a call (still the wrong bed) from Teller County Dispatch telling me that an officer was at the house and that Kegan was not there. The dogs were barking in the outdoor kennel and there was no sign that Kegan had been home from school. Okay, I was totally upset now. At around 6:00 pm, they brought Ricks roommate into the room and at 6:30 pm Rick arrived. He looked great. THANK GOD. He had a tube coming out of his side, making him borg-like, but other than that, he looked good. The phone rang (still the wrong bed) and it was dispatch again telling me that Kegan had just showed up. He did miss the bus and got a ride from a friend’s mom. Whew. I was seriously exhausted just from stress. At around 7:30 pm, we had a lovely hospital dinner together (he got to order room service and I had to run and get a salad in the cafeteria). After dinner, they gave him some very nice pain medication, and I felt okay about leaving him. At around 9:00 pm I started for home. I got home around 11:00 pm. I took a shower, set my alarm to take Kegan to the airport in the morning and fell fast asleep. Morning came way too soon.
Wednesday:
On the way to the airport, Kegan wanted to stop and see Rick. So, we did. We ran into the hospital, Kegan gave him a hug and we ran out. We got to the airport in good time, and everything went smoothly. When I got back to the hospital, Rick told me he could go home. YES! I was so happy. As we were doing the paperwork and run-through about the care of the lovely tube coming out of his side, I noticed that I forgot to grab his shoes from the room we transferred from. I ran over to the room, and nope…no shoes. I asked the cleaning people and they looked and checked the lost and found, but nothing. They thought the evening cleaning crew may have tossed them. Shit. That totally sucked. My poor husband, after his crappy ordeal had to walk out of the hospital in those silly non-skid slippers they give you. He was really, really not happy. So on the way home I ran into a shoe store and got him some very nice Reeboks – and they even fit. The rest of the week has been fine. He has been doing great, but we have to go back next week to finish the procedure. Hopefully I won’t lose his shoes.
Thanks for all the support, thoughts and prayers. Whew. Just typing this and re-living it has made me tired. I will have more updates as I have more information.